I started this blog because it is an escape for me. I like to write and I can have a witty sense of humor at times. There are times when I just need to see the positives, the funny moments, the goofy times that you think your family is the only family to go through. And to celebrate how hard it is to be a mommy and what a fantastic job we all do at it! Whether you work out of the home, stay home with your kiddos or any other type of mommying you do!
Part of my mommying experience is to be a parent of a child with Autism. All of my children are the lights of my life. All of the have strengths and struggles. Autism has been the roughest struggle of my life.
We knew there was something going on with my 8 year old when he was 15 months old. He had spoken a few words (mama, dada, go) and then he stopped talking. Looking back now, we knew something was going on at 6 months old when he was incapable of tolerating even those dissolvable Gerber Puffs. Long story short, we have had a multitude of services, interventions, IEPs, therapies, psychiatry, etc.
Over the past few months, we knew the medications he was on just were not the right fit. He was still struggling with the inability to regulate his emotions significantly. We decided to take him off all medications to get a baseline so we can get the right medications, instead of continually adding medications/doses to medications that just aren’t the right ones for him. This has been the most challenging part of our lives, ever. We have never felt so out of control or unable to help our son. I am sad to say that I believe he has felt very out of control as well. It devastates me to know that my youngest sees everything, no matter how hard we try to shelter him, and what this is doing to him emotionally.
The saying, “if you meet one child with Autism, you meet ONE child with Autism” is so true. Not all children diagnosed with Autism will have the same rage that ours does. I am hopeful as we continue our journey with therapy, his support team, his IEP and medications, that we can help him control himself so he can be the awesome, funny, independent, smart, talented young man that he is.
I have been open about my son’s diagnosis. There is no reason why not to be. In my opinion, this is just a part of our lives.
I am not open about the struggles we encounter on a daily basis. There are a number of reasons why. I don’t want pity. I don’t want to listen to you tell me what I should do, what I am doing wrong, what helped your Aunt Friedas’ sons’ cousins’ kid. Nor do I want to justify what we, as a family, are choosing to do and why. I don’t want to listen to you not believe me when I say something, downplay what I’m saying because you have not encountered the experience with him. I don’t want the eye rolls that I see you do through the corner of your eyes. I choose to suck up many of the things that people say to me because I don’t want to cause conflict. In all honesty, walk a mile in my shoes. I dare you (what I think about the people who choose to be negative nancies about our life).
Right now, I am a tired working mommy. Exhausted, actually. Sad, scared, worried and often times, defeated. More often than not, my anxiety increases when I reach the front door. What will I walk into today? Inevitably, I know it will be a battle. The battle can be 15 minutes or 3 hours. It can be because I haven’t asked the right question or answered fast enough or maybe because he doesn’t like the food we have in the house or we don’t give him the answer he wants to here.
So many people have “stuff” going on. “Stuff” – that is what I call shit that happens to everyone in life. We experience disabilities, death of loved ones, financial problems, distance from loved ones, illnesses, etc etc etc. Our problems aren’t any worse or better than anyone else’s.
To cope with our “stuff”, I need to take time out from home. I get my nails done. I bake. I go out with girlfriends every so often. I do things that make me smile. I had forgotten that writing makes me smile.
So now you know a bit about me and you know why this blogging experience is important to me. I promise that my posts won’t be emotionally draining. That is not what I want to write about. After a tough weekend, I felt the need to open up about who I am and what has influenced me.

